Lucy has a rare genetic disorder. Two doctors are leading the desperate hunt for a cure: her parents
Geri and Zach Landman have filled their phones with videos of baby Lucy, the youngest of their three girls: Lucy flapping her hand for a high-five, Lucy pulling herself to her feet and taking a single wobbly step, Lucy babbling “dada.”
Someday they may look back on the footage with the sweet nostalgia of any parent. But they know the videos could instead become artifacts of a child they met only fleetingly, before an extremely rare neurological disorder stole her fledgling gestures, her mobility, her voice.
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